| Here
is our top101 - You know you're a parent of a child with cancer when:- |
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In
making this list we have adapted many of the entries from the much
larger list on the Squirrel
Tales website |
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1 |
You carry a tube of
Ametop® in your purse instead a tube of lipstick |
| 2 |
Children with hair
look strange! |
| 3 |
You can sleep anywhere
and in any position. A comfortable piece of furniture is
anything that reclines more than 10 degrees. |
| 4 |
Your partner asks what
that sexy perfume is, and it's the open Alcowipe® in
your pocket! |
| 5 |
You haven’t noticed
that the sharps container is on the kitchen table until half way
through lunch. |
| 6 |
You enjoy the drive at
3:00am to the Hospital Ward because there are no other cars on
the road. |
| 7 |
You can name all the
equipment used on Holby City/Casualty. |
| 8 |
You can diagnose
patients on Holby City/Casualty before the Doctors/Nurses do,
and you spot their mistakes! |
| 9 |
You hear a bus/coach
reversing and you think the alarm on the IV machine is beeping. |
| 10 |
You are so proud when
your child finally gets hair back – and then they dye it! |
| 11 |
Your bathroom
pedal-bin has "Bio Hazard" written on it. |
| 12 |
You and your kid can
manoeuvre the IV machine & trolley to the Patients kitchen,
make six rounds of toast, tour the ward and make it back to your
room before the IV low-battery alarm sounds. |
| 13 |
You realize you've
been home two weeks, and you're still measuring your child’s
liquid ins and outs! |
| 14 |
The nurses stop
responding to your child’s IV alarm, knowing you'll fix it
anyway. |
| 15 |
You have reset the IV
in your sleep, every 30 minutes without waking up once! |
| 16 |
You child feels naked
or lonely without their IV pole. |
| 17 |
Your child takes their
IV pole for a walk around the ward even though they’re not
connected. |
| 18 |
You can hook up an IV
pump with your eyes closed. |
| 19 |
You keep an emergency
bag packed at all times (just like being 9½ months pregnant). |
| 20 |
You can read the
doctors prescription word for word, and are asked to decipher it
by the Nurses/Chemist! |
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| 21 |
You know the medical
terminology/protocols/regimen better than your GP. |
| 22 |
The Local Health
Authority delivers stores to your door! |
| 23 |
You have dedicated one half of your front room to medical supplies.
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| 24 |
You have a syringe in
your purse and you're not a diabetic. |
| 25 |
You can correct the
Nurses when they misread your child’s chart and explain why! |
| 26 |
You can park/abandon your car anywhere you like in the Hospital car park
even in front of the security guards without fear of a clamp or
ticket! |
| 27 |
Medical students ask
to borrow your notes! |
| 28 |
Your main source of
nutrition comes from Aspirin/Paracetomol/Pro-plus®. |
| 29 |
When you use the term six-pack, you are talking about platelets, not
Beer!
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| 30 |
You hear yourself say the words, "You can have anything you
want" at least twice a month!
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| 31 |
You've been telephoned
by a friend of the family to check on the chemo schedule asking,
"How will her counts be on the 9th?" before they
arrange a party. |
| 32 |
Your child’s critique of the nursing/medical student's examination
skills is the same as the supervising Consultant/Registrar.
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| 33 |
When you walk down the
hall with your child and find yourself feeling naked without the
IV pole!! |
| 34 |
When the siblings want to know what the child's counts are to see if they
can go inside and eat at McDonald's.
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| 35 |
Your kid has received
enough get-well cards to make the entire bonfire on 5th
November. |
| 36 |
When you are thankful
for Dexamethasone® because there will be nothing
left of the Sunday Dinner. |
| 37 |
You have to tell the
nurses where their supplies cupboards are! |
| 38 |
When all it takes is 10 minutes from fridge to table for a seven-course
for your child’s Dexamethasone® pig out.
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| 39 |
When your child rugby-tackles you screaming, "I'm starving to death!
Feed-me!" in public and you laugh instead of scolding them
for embarrassing you!
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| 40 |
You can make a variety
of arts and crafts out of hospital supplies: isolation masks
become turtles and drip tubes filled with glitter and baby oil
make great shiny necklaces! |
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| 41 |
When the doctor finally
enters the examination room they find you and your child
with several glove balloons and latex glove powder around your
mouth.
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| 42 |
The share care Hospital Ward calls you at home asking what size port
needles they should stock in case they have to access your
child's port and then ask if you’re able to access it for
them.
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| 43 |
When you think that
anything that your child will eat and keep down is a
"nutritious meal", even if it is chocolate and lollies. |
| 44 |
All your body lotion
and plasters are gone because the doll needed Ametop®
too! |
| 45 |
When your 12 year old
is making appointments for the nursing staff to do their
manicures, because they love her nail art. |
| 46 |
Training for the
London Marathon consists of laps around the Paediatric Oncology
Ward with your child in their wheel chair. |
| 47 |
When your child has done all of the puzzles in the playroom at the
hospital so many times that she/he can now do them in five
minutes with the pieces upside down.
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| 48 |
Your child has his/her own website to keep family and friends updated on
his/her progress because calling everyone gets to be too
expensive and repeating the report over and over is tiring
. |
| 49 |
You hear yourself say "just because you have cancer does not mean
you can be rude" and you don't feel bad about it.
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| 50 |
When asked which child
on the playground is yours, you reply "the bald one." |
| 51 |
Your Child has been
out of the hospital for a week and begs to watch "Casulty/Holby city" on TV because it feels like
home. |
| 52 |
Your child is so used
to staying in the hospital that they sleep all night there but
wake up in their own bed at home because they’re not
comfortable. |
| 53 |
Your child corrects a nurse when they forget to change the caps of their
tubes.
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| 54 |
You're happy when your
child is still awake at 1am and is now asking for his/her
favourite meal. |
| 55 |
You'll even raid your
friend's fridge while visiting because of child’s steroid
assisted hunger. |
| 56 |
You have the share care Local Hospital Ward and the Great Ormond Street
Oncology ward's phone number's programmed as speed dial numbers
on your mobile.
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| 57 |
You have learnt all of the parts of blood, know what they do and have
memorised the last two months path lab results.
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| 58 |
The old phrase,
"bald is beautiful," takes on a whole new meaning. |
| 59 |
You can laugh and cry,
at the same, time while reading this list. |
| 60 |
Your child take’s
their temperature and does a good job! |
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| 61 |
All of the
neighbour’s kids are having water fights with syringes. |
| 62 |
When you feel more at home in the ward than the new doctor!
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| 63 |
When, at home, you try
to dial "9" to get an outside line. |
| 64 |
Your child's photo album includes pictures of before, during, and after
surgery.
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| 65 |
You're making twice as
many trips to the supermarket because your child is on
dexamethasone® |
| 66 |
You explain to your
child that the hospital is not a hotel and the nurse at the
front desk is not her private secretary for personal calls. |
| 67 |
People in supermarkets
are looking closely trying to figure out whether your child is
male or female. |
| 68 |
At the restaurant,
your child circles his/her meal selection on the menu and hands
it back to the waiter. |
| 69 |
When you are proud of
your child who tells the surgery staff, "I don’t want
gas, I use the oxygen mask, I wake up ‘talking’ in the
Operating room and if this takes more than 15 min I'm coming
after you." |
| 70 |
When you mistakenly put Ametop® cream on your toothbrush.
Numb tongue!
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| 71 |
You're filling
syringes on Halloween and you're NOT a psycho. |
| 72 |
You can joke about the fact that your child has cancer.
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| 73 |
Your compassion is just a little too non-existent for
other people and their kids minor illnesses and ailments!!
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| 74 |
You don't feel
comfortable leaving the house until you make sure that your
handbag contains heparin flushes, medical tape, bandages and at
least a day's supply of pills. |
| 75 |
The twenty minutes it takes to go to the hospital shop for a magazine is
your escape for the day.
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| 76 |
Your child can pass as
a prep nurse as they help to lay out the supplies needed for
portacath maintenance. |
| 77 |
All of your shopping
lists have lab results on the back of them. |
| 78 |
You're the only person in the supermarket reading the labels so you are
sure to buy your child the food topping the junk food list!!
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| 79 |
Your child asks if the
oncology nurse actually knows what she is doing when accessing
the port. |
| 80 |
Your child, having reacted to the blood transfusion, screams at
the top of their voice, at the nurse who is disappearing out of
the door “I need painkillers now, how f*cking difficult
can it be to get f*cking painkillers in a f*cking Hospital”
and you can only agree!
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| 81 |
The "second opinion" oncologist says you know more about the
diagnosis than he does.
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| 82 |
When you get a McDonalds Charge Card because you spend most of your life
there!
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| 83 |
You don't have any more water pistols because your child reckons that
they can shoot a lot further and more accurately with the 50ml
syringes.
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| 84 |
You have so many
get-well cards on the wall that you’ve forgotten if it's
wallpapered or painted. |
| 85 |
When you can use the
hospital bed railing as a pillow and find it comfortable. |
| 86 |
You are taking pictures in the hairdressers of that momentous first
haircut since your child’s hair grew back, and you have to
explain that he/she hasn't had a cut in over a year!
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| 87 |
When your husband has more hair than your daughter.
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| 88 |
When you have more
pictures of your child bald than with hair. |
| 89 |
When you take your
child to the hairdressers to get his/her hair dyed blue you have
to show pictures of them bald so they don't think you are a
strange parent. |
| 90 |
Waiting at a busy
junction in the car, you get your child to remove their hat and
look pathetic in the hope someone will let you in. |
| 91 |
When sleeping with
your eyes open is the only sleep you get. |
| 92 |
You schedule a blood
transfusion before the holiday "just to be on the safe
side." |
| 93 |
You put a plate of
food on the table at dinnertime and your child shouts,
"Hey! This isn't what I ordered!" |
| 94 |
Despite at least 1000 customers per day the Gt
Ormond Street pharmacist knows your name! |
| 95 |
You stockpile your child’s favourite foodstuff
during "that time of the month" - the dexamethaZONE! |
| 96 |
When you know exactly how many seconds you must hold down the adjustable
bed controller button, to get the angle just right so you can be
comfy in the bed.
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| 97 |
When the nurse calls they ask about the family on a first and last name
basis.
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| 98 |
Having spent months willing your
child's hair to grow back now that they're on maintenance and it's
grown back you are paying to have it cut, plucked and removed! |
| 99 |
Every little thing can make you cry in a heartbeat, but this list, on the
other hand, has you rolling on the floor!
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| 100 |
When you've cried so much in front of your child that, without any change
of expression, they calmly ask you if you’re crying because
you're mad, sad or happy?
|
| 101 |
You really think this list is funny, when most normal
people either don't get it or start to cry!
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